This website is hosted and developed by some of staff at the John Walton Muscular Dystrophy Research Centre (JWMDRC).
The website content is created and maintained by Ceratium ltd.
This page explains when and why we collect personal information about people who visit our website, how we use it and how we keep it secure.
We take great care with any information we receive from you and are constantly looking at ways we can improve what we do. We may therefore change the content on this page from time to time so please check this page occasionally to ensure that you’re happy with any changes. By using our website, you’re agreeing to be bound by our policy.
Who are we?
As previously mentioned some of the staff who work at the JWMDRC look after this website. The JWMDRC is part of the Institute of Genetic Medicine which, in turn is part of the Faculty of Medicine at Newcastle University in the UK. We are based at the Centre for Life, Central Parkway, Newcastle upon Tyne, NE1 3BZ.
The content of the website is maintained by Ceratium Limited, The Haven, 20 Burlingham Avenue, West Kirby, CH48 8AP, UK.
How do we collect information from you?
The information you send to us, when you get in touch via our contact form, essentially goes straight to someone’s email inbox and is not saved on our website database or systems.
Like millions of other websites, we use Google Analytics to find out about our visitors and where they do and don’t visit.
What type of information is collected from you?
The personal information we collect might include your name, address, email address, IP address, and information regarding what pages are accessed and when.
How is your information used?
We may use your information to:
- ensure our website is working correctly, is fit for purpose and is being seen by the outside world
- if you get in touch with us with a question, then we need to save details such as name and email address to enable us to get back in touch with you
The Google Analytics tracking information allows us to better understand the kind of people who come to my site and what content they’re reading. This allows us to make better decisions about design and writing.
Occasionally, we will compile aggregate statistics about the number of visitors this site receives and browsers being used. Some basic aggregate statistical information is sometimes generated to try and identify areas where we can improve what we do but no personally identifying data is included in this type of analysis.
All of our activity falls within the bounds of the Google Analytics Terms of Service.
We intend to remove all information about each question from our website once it has been dealt with and this will include your accompanying contact details. Our sites are backed up on a rolling basis so we would anticipate that contact details once deleted from a site would fully be removed from our systems in about a week.
Who has access to your information?
We will not sell or rent your information to third parties. We will not share your information with third parties for marketing purposes.
Your choices
We really respect your choices and are happy to remove your personal information from our systems. If you would like us to look into this for you please contact [email protected]
How you can access and update your information
The accuracy of information is important to us and you can always inform us of any changes to this at [email protected] so that we can update the information on our site.
Security precautions in place to protect the loss, misuse or alteration of your information and protection of the overall website
When we receive information, we take steps to ensure that it’s treated securely. We have a SSL certificate in place for this website. You can tell this by the presence of a small green padlock before the URL in the browser bar at the top of the screen. This means all information sent between your web browser and our web server is secure.
To ensure the functionality of our website is secure along with the information we hold on the server, we have installed specific security software. This software not only provides a firewall to all administrative areas but monitors activities of less scrupulous visitors whose aim is to gain access to areas of the site where they can install malicious code. Such visitors, once identified by where they have attempted to visit and also their activity, have their IP address blocked by our systems and this is also added to a blacklist of similar IP addresses.
We routinely monitor the security of our sites’ systems such as this. When available, we update all software to maximise security. As part of our security procedures we are in touch with the wider community of web security experts who raise awareness of any potential issues and offer valuable advice.
Our server, where all information is held, is located in the United Kingdom meaning all the data and information we store is held within the EU.
Use of ‘cookies’
Like many other websites, this website uses cookies. ‘Cookies’ are small pieces of information sent to your computer and stored on your hard drive to allow that website to recognise you when you next visit. They collect statistical data about your browsing actions and patterns and do not identify you as an individual. For example, we use cookies to store your country preference. This helps us to improve our website and deliver a better more personalised service.
It is possible to switch off cookies by setting your browser preferences. For more information on how to switch off cookies on your computer, visit our full cookies policy. Turning cookies of may result in a loss of functionality when using our website.
Links to other websites
Our website may contain links to other websites run by other organisations. This privacy policy applies only to our website‚ so we encourage you to read the privacy statements on the other websites you visit. We cannot be responsible for the privacy policies and practices of other sites even if you access them using links from our website.
In addition, if you linked to our website from a third-party site, we cannot be responsible for the privacy policies and practices of the owners and operators of that third-party site and recommend that you check the policy of that third-party site.
Review of this Policy
We keep this Policy under regular review. This Policy was last updated – 11th June 2018.
