Webinars and presentations

Upcoming webinars

“Challenges and opportunities regarding return of clinical research results”

VISION-DMD Webinar: Wednesday 19th August 2020

3pm -4pm CEST

In this webinar, Dr. Peay will address the ethical, legal, and social implications of returning clinical research results to trial participants. Dr. Conklin will discuss ReveraGen’s approach to return of individual patient data to families of participants in the vamorolone studies. There will be time for questions from the audience.

About the presenters:

Dr Laurie Conklin – Read our interview with Dr Conklin here

Dr Holly Peay – Senior Research Scientist in the GenOmics, Bioinformatics, and Translational Research Center at RTI International. Dr. Peay received her BA from University of Virginia in Biomedical Ethics, her MS in Genetic Counseling from University of South Carolina School of Medicine, and her PhD in Medicine (Social/Behavioral Research focus) from Leiden University in the Netherlands. She is Board Certified in clinical genetic counseling by the American Board of Genetic Counseling. Dr. Peay conducts social/behavioral and empirical bioethics research related to common and rare disorders. She has expertise in studying decision-making processes, decision motivations, perceptions of benefits and harms, and informed consent in research and clinical settings. Focal points of Dr. Peay’s research have been the psychosocial and behavioral impacts of the application of emerging technologies, as well as approaches for the ethical application of new technologies. She is experienced in embedding social/behavioral studies into clinical research to assess the ethical and social implications. Further, Dr. Peay frequently conducts community-engaged research in which she integrates diverse stakeholders into study development, implementation, reporting, and the development of resulting recommendations or guidance

Use this link to add this event to your calendar link