On 17th February 2017, the Vision-DMD project held a workshop on Standard of Care for Duchenne Muscular Dystrophy in Rome.
Vision-DMD partner UPPMD organised this workshop on DMD standards of care as part of their activities within the project. The views of the speakers and participants, do not necessarily reflect the views of Vision-DMD consortium partners.
Welcome and introduction: Michela Guglieri- Vision-DMD Project Coordinator, University of Newcastle UK.
Comprehensive duchenne care: Kathi Kinnet – PPMD USA.
Neuromuscular management and steroids: Eugenio Mercuri – Policlinico Universitario Agostino Gemelli, Italy.
Physiotherapy: Elena Mazzone – Policlinico Universitario Agostino Gemelli, Italy.
Standards of cardiology care: Kathi Kinnet – PPMD USA.
Nutrition: Simona Bertoli – University of Milan, Italy.
Transition: Ros Quinlivan – consultant in neuromuscular diseases, NHNN London, UK.
Respiratory and Emergency: Fabrizon Racca – Rep. di Anestesia Pediatrica AO Nationale, Alessandria, Italy.
Psychological aspects: Jos Hendriksen – Clinical (neuro)phychologist, Kempenhaeghe, Netherlands.
Dissemination of standards of care: Becca Leary – TREAT-NMD UK.